2025 MCTC Project List

Below are 10 MCTC planned projects in 2025. 

We sincerely invite you to join us and collaborate on these initiatives.
We welcome dedicated participants who are committed to contributing their time and effort, with active engagement in regular online meetings.

1. Criteria for IIM remission & LDA criteria

Developing and Validating “Remission” and “Low Disease Activity” Criteria for Idiopathic Inflammatory Myopathies

Project Leader: Nantakarn Pongtarakulpanit, Shiri Keret
Email: [email protected]

2. Definition of IIM-ILD progression

Sandardizing the Definition of IIM-ILD and IIM-ILD progression

Page link

Project Leader: Faye Pais, Vivik Nagaraja
Project Co-leader: Robert Hallowell, Erin Wilfong 
Email: [email protected]

 

3. Criteria for IIM worsening

Evaluation and Revision of the “Clinical Worsening”
Definition in IIM Clinical Trials 

Project Leader: lazsmin Ventura
Project Co-leader: Valérie Leclair, Francisca Bozan
Email: [email protected]

4. Consensus on IIM outcome measures

Appropriateness and Feasibility of Outcome Measures in IIM

Project Leader: Kaveh Ardalan
Project Co-leader: Akira Yoshida 
Email: [email protected]

5. Global study recruitment patterns

Global Patterns and Challenges in Patient Recruitment for Idiopathic Inflammatory Myopathy Clinical Trials: Results from the 2024 MCTC Investigators’ Survey

Project Leader: Iris Tang,
Project Co-leader: Kaushik sreeram
Email: [email protected]

6. Gaps in assessment expertise

Gaps in Training and Expertise in Myositis Outcome Measures: Insights from the 2024 MCTC Investigators’ Survey

Project Leader: Shiri Keret
Project Co-leader: Prateek Gandiga
Email: [email protected]

7. Characteristics of trial versus non-study IIM patients

Characteristics of IIM Patients Enrolled in Clinical Trials Compared to “Non-Study” IIM Populations

Project Leader: Edoardo Conticini
Project Co-leader: Iris Tang
Email: [email protected]

8. Duration of IIM clinical trials


Assessment of the Potential for Shorter Duration of IIM Clinical Trials (52 vs. 24 weeks)

Project Learder: Akira Yoshida
Project Co-leader: Eduardo Dourado
Email: [email protected]

9. Fair market value in IIM trials’ budgets

Scoping of Perceived Reasonable Fair Market Values in Myositis Clinical Trials

Project Leader: Prateek 
Project Co-leader: Sabeena
Usman
Email: [email protected]

10. IVIG pharmacokinetics & dosing

Pharmacokinetics and Optimal Dosing of IVIG in
Dermatomyositis

Project Leader: Stephen Balevic,
Project Co-leader: Kaveh Ardalan
Email: [email protected]

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